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| Originally presented at the 3rd annual Panic Disorders Institute (PDI) Conference on June 9, 1999. |
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This pilot study regards web sites that explicitly address anxiety or panic disorder. Educational content, advisory source and degree of marketing are measured for many web sites to present a statistical overview of how anxiety and panic disorders are addressed on the Internet's World Wide Web (WWW). This study shows that roughly half of the anxiety/panic disorder web sites fail to acknowledge any of three prominent topics that are widely accepted by doctors of both medicine and psychology. Furthermore, roughly one third of the web sites not only fail to acknowledge such topics, but also present a high degree of marketing. Exploitation is considered in regard to sites with a low educational content and a high degree of marketing.
In August, 1998, my friend Jay and I developed a special interest search engine devoted to anxiety, panic and related disorders; known as Anxiety-Panic.Com. By late 1998, this search engine's database contained links and descriptions for roughly 200 web sites. Having made an effort to include a diverse and unbiased collection of web sites, I noticed these sites varied greatly in character and perspective. I began to worry about the educational quality and the potential for exploitation of some sites, but I could only guess at the magnitude of the problem. Then, in December of 1998, Dr. Shipko of the Panic Disorders Institute (PDI) announced preparations for the 3rd annual PDI conference; scheduled for June, 1999. I asked Dr. Shipko if I could present a talk regarding an overview of education and exploitation of anxiety and panic disorder on the web. He accepted my request, and I promptly began a study for presentation at the conference.
For each web site, I decided to measure three independent variables; which I called educational posture, advisory posture and marketing posture. Educational posture was intended as a measure of educational quality. Of course, educational quality is difficult to define and is inherently subjective, yet I designed a simple measure that most doctors and patients found acceptable. Otherwise, advisory posture and marketing posture could be easily defined and measured objectively.
Educational Posture was measured on the basis of three widely accepted concepts of anxiety and panic disorders:
2 - The value of Cognitive-Behavioral Therapy (CBT) in the treatment of anxiety and panic disorders. This concept is important since CBT has been shown to, generally, be the most effective psychotherapy for anxiety and panic disorders.
3 - The value of medications in the treatment of anxiety and panic disorders. This concept is important since some forms of anxiety and panic disorders are known to result from medical dysfunctions of the endocrine or nervous system.
Advisory Posture indicates the qualifications of the person(s) providing advise via the web site. The following categories were used, and their order is not necessarily a reflection of expertise.
1 - Lay Person
2 - Anxiety/Panic Patient
3 - Spiritual Worker (priest, alternative medicine, etc.)
4 - Social Worker (counselor, nurse, etc.)
5 - Doctor(s) of Psychology (psychotherapists, etc.)
6 - Doctor(s) of Medicine (psychiatrists, neurologists, etc.)
7 - Doctor(s) of Psychology and Medicine
1 - Site PROMOTES products or services; namely via banner ads or web franchise. In other words, the web site owner profits indirectly from the products or services marketed. (Simple Web links were not considered a form of promotion nor sales)
2 - Site DIRECTLY SELLS products or services. In other words, the web site owner profits directly from the products or services marketed.
The data for this study was collected from March to May of 1999. A total of 221 web sites from the Anxiety-Panic.Com database were reviewed for this study. Of those 221 web sites, 79 qualified for this study by explicitly featuring anxiety or panic disorder as a prominent topic. The qualified sites are mostly from the United States, but also include sites from Canada, Europe, Australia, and South Africa.
The other 142 sites were excluded from this study because they focused on anxiety-related topics, but not anxiety or panic disorder in general; topics such as OCD, PTSD, Stress, Phobias, Agoraphobia, Depression, etc. Also not included were a few non-English language sites as I am only fluent in English. I also must acknowledge that, due to the nature of the Internet, it is impossible to tell how many anxiety or panic related sites are not included in the Anxiety-Panic.Com database; which makes the relative sample size undetermined and compels me to consider this purely a pilot study.
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Educational Overview |
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| Number of Sites | 1 | 0 | 0 | 37 | 6 | 22 | 13 |
| Percentage | 1.3% | 0.0% | 0.0% | 46.8% | 7.6% | 27.8% | 16.5% |
| Educational Posture | -3 | -2 | -1 | 0 | 1 | 2 | 3 |
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The educational overview (table above) shows that nearly half of the anxiety and panic disorder web sites fail to acknowledge any of the three educational concepts considered (i.e. educational posture = 0). In other words, nearly half of these sites fail to mention the need for medical diagnostics, the value of CBT and the value of medications. This is distressing for several reasons.
Most distressing is that many people browsing such sites may not have been properly diagnosed and may have simply assumed that they have an anxiety or panic disorder based on nothing more than having similar symptoms. Such people are not only at risk of neglecting their actual health problem, but might also be tempted to try treatments that are inappropriate to their actual condition. Unfortunately, the need for medical diagnostics appears to be the most neglected of the three educational concepts; despite the fact that it is perhaps the most important of these concepts. For properly diagnosed anxiety/panic patients, it is distressing that nearly half the sites fail to acknowledge the values of CBT and medications. In failing to acknowledge these concepts, such sites can mislead or confuse patients who are seeking guidance. Without appropriate guidance, effective treatment is delayed; which not only prolongs suffering but may also allow the sufferer's condition to worsen. On a brighter note, only one site was outright misleading (denying all three educational concepts) and more than a quarter of the sites addressed at least two of the educational concepts. Nonetheless, there is much room for improvement. |
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Advisory Overview |
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| Number of Sites | 13 | 0 | 17 | 2 | 7 | 16 | 12 | 12 |
| Percentage | 16.5% | 0.0% | 21.5% | 2.5% | 8.9% | 20.3% | 15.2% | 15.2% |
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Advisory Posture |
Unspecified | Lay Person | Patient | Spiritual Worker | Social Worker | Doctor of Psychology | Doctor of Medicine | Doctors of Psychology and Medicine |
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The advisory overview shows that roughly half of the anxiety and panic disorder web sites are advised by doctors of psychology and/or medicine. At first glance, this abundance of doctors suggests much good education on the web since such doctors are the most qualified to offer advice. However, one of the following tables (Advisory Posture vs Educational Posture) shows that web sites advised by doctors do not necessarily provide good educational content.
Another interesting note is that anxiety/panic patients are, by a small margin, the largest specific group producing web sites devoted to anxiety and panic disorder. This abundance of patient sites is possibly a reflection of past frustrations with the health care community. It is important to understand that such disorders were grossly misunderstood by most doctors until recent years. Coincidentally, in recent years the Internet came into popular use and many frustrated patients used this new medium to share experience, support and education. In many ways, Internet access has been a watershed for anxiety/panic patients who, because of agoraphobia or social phobia, had limited access to educational material and rarely interacted before. |
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Marketing Overview |
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| Number of Sites | 15 | 17 | 47 |
| Percentage | 19.0% | 21.5% | 59.5% |
| Marketing Posture |
No Sales Nor Promotion |
Promotion via Banner Ads or Franchise |
Direct Sales of Products or Services |
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The marketing overview shows that more than half of the anxiety and panic disorder web sites directly sell products or services. Such products and services include a variety of clinical services, consultations via phone or e-mail, seminars, books, cassette or video tape programs, herbal and pharmaceutical medications, electrical stimulation devices, biofeedback devices, and relaxation products such as soothing music, special pillows, pleasant looking plants, smooth rocks, therapeutic vacation packages, etc. Of course, the value of such products and services to the patient ranges from respectable to highly questionable (i.e. outdated, misleading or outright fraudulent).
At this time, a notable marketing fad is the repackaging of CBT under a variety of creative names and premises. Such packages are often promoted as unique methods of recovery (sometimes neglecting to mention CBT at all) and are often credited to supposed experts or enlightened patients. These programs are sold in the form of tapes, books or seminars; usually with exaggerated claims of effectiveness. Though such programs typically have some degree of educational value, they can also be harmful to patients as a distraction from more appropriate treatment and a burden to often stressed finances. Direct marketing sites aside, the number of anxiety/panic sites with promotional content is roughly equal to the number of sites without promotional content. The most common form of promotion is banner ads. The products and services promoted by such banner ads vary greatly and are often unrelated to anxiety and panic disorders. Another form of promotion is web franchise; where one site forwards sale orders to another site in return for a small percentage of the profit. Unlike banner ads, there is a notable trend among the anxiety/panic franchise sites. Most of these franchise sites sell books regarding anxiety and panic disorders via prominent Internet book stores (most commonly Amazon.Com). Promotion of books can be very helpful to patients; however, many book franchise sites may have a significant bias in the books they promote. Patients are, perhaps, better served by accessing Internet book stores directly. |
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Advisory Posture vs Educational Posture |
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| 3 | 1.3% | 0.0% | 3.8% | 0.0% | 1.3% | 1.3% | 3.8% | 5.1% |
| 2 | 3.8% | 0.0% | 5.1% | 0.0% | 0.0% | 8.9% | 5.1% | 5.1% |
| 1 | 2.5% | 0.0% | 0.0% | 1.3% | 1.3% | 0.0% | 0.0% | 2.5% |
| 0 | 8.9% | 0.0% | 12.7% | 0.0% | 6.3% | 10.1% | 6.3% | 2.5% |
| -1 | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| -2 | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| -3 | 0.0% | 0.0% | 0.0% | 1.3% | 0.0% | 0.0% | 0.0% | 0.0% |
| F | 53.8% | -- | 58.8% | 50.0% | 71.4% | 50.0% | 41.7% | 16.7% |
| mmm | Unspecified | Lay Person | Patient | Spiritual Worker | Social Worker | Doctor of Psychology | Doctor of Medicine | Doctors of Psychology and Medicine |
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Comparing advisory posture verses educational posture (+3 to -3), we can see the educational performance of each advisory group. The row labeled "F" is the failure rate for each specific advisory group; in other words, the percentage of sites within each group that either deny or fail to acknowledge the three educational concepts considered.
The lowest failure rate is found for sites advised by doctors of both psychology and medicine (16.7%). This is not surprising since such an advisory group is likely to have a well rounded perspective of both the medical and psychological issues of anxiety/panic. However, the failure rates for doctors of medicine (41.7%) or doctors of psychology (50.0%) is rather high. The main reason for these high rates is that many such sites promote awareness of clinical services without providing adequate educational material. In many such cases, doctors simply present their specialized perspective and neglect addressing the general issues of anxiety and panic disorder. In some cases, there is no attempt to educate at all. This high percentage of sites that are either lacking or highly biased in educational content can prove confusing to patients seeking appropriate treatment. Furthermore, this problem seems exacerbated by the high failure rate for the social worker group (71.4%) comprised of counselors and nurses. The spiritual worker group, comprised of religious advisors and practitioners of alternative medicine, had a high failure rate (50.0%). However, this rate is probably not a reliable generalization since only two such web sites qualified for this study. Nonetheless, what is notable and troubling is that one of these sites actually denied all three of the educational concepts. This site suggested that medical diagnostics, psychotherapy and medications were all unnecessary in the treatment of panic attacks. Instead, love and acceptance was the recommended treatment strategy. As warm and friendly as this message may sound, it is also a misleading and potentially harmful message. The patient group had the second highest failure rate (58.8%). This rate is, perhaps, not surprising since many patient sites regard personal experiences and do not attempt to provide general education of anxiety and panic disorders. However, of the sites that do address the educational concepts, it is interesting to note that the statistics of the patient sites is similar to the statistics of the medical doctor sites (equal numbers of sites for educational postures of 3, 2 and 1). Of course, the number of failed sites (educational posture = 0) is twice as high for patients compared to medical doctors, which is why medical doctor sites in general have a lower failure rate. Perhaps most interesting is that the failure rate for patient sites is lower than that for social workers; suggesting that educated patients are currently providing better education than some segments of the professional health care community. |
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Advisory Posture vs Marketing Posture |
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| 2 | 5.1% | 0.0% | 3.8% | 1.3% | 7.6% | 17.7% | 11.4% | 12.7% |
| 1 | 8.9% | 0.0% | 6.3% | 1.3% | 1.3% | 1.3% | 1.3% | 1.3% |
| 0 | 2.5% | 0.0% | 11.4% | 0.0% | 0.0% | 1.3% | 2.5% | 1.3% |
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mmm |
Unspecified | Lay Person | Patient | Spiritual Worker | Social Worker | Doctor of Psychology | Doctor of Medicine | Doctors of Psychology and Medicine |
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The above table is a comparison of advisory posture verses marketing posture; where 2 = direct sales of products or services, 1 = promotion via banner ads or franchise, 0 = no sales nor promotion.
With regard to direct marketing (2) we find the highest percentage of web sites (17.7%) corresponds to doctors of psychology. Similarly, we find high percentages for doctors of medicine (11.4%) and doctors of psychology and medicine (12.7%). Altogether, doctors who directly market their services on the web comprise roughly 42% of the anxiety/panic web sites. This is no surprise considering that roughly half the sites are advised by doctors in general, and that doctors usually offer information for making appointments. Regarding sites that promote via banner ads and franchise (1), the highest percentage is associated with the unspecified persons group (8.9%), followed by the patient group (6.3%). Chances are that most of these sites are not making significant profits, but simply use ads and franchise to offset their Internet expenses. Among the sites that neither sell nor promote (0), patients form the most significant group (11.4%). Patients produce such sites at their own expense for a variety of reasons. Some patients simply need to express what has been a very profound experience in their life. Others want to invite conversation with fellow sufferers. Many want to promote awareness, understanding and education. As mentioned earlier, such volunteerism among patients is probably motivated by the gross misunderstanding of anxiety and panic disorders in the recent past. |
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Educational Posture vs Marketing Posture |
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| 2 | 1.3% | 0.0% | 0.0% | 30.4% | 5.1% | 17.7% | 5.1% |
| 1 | 0.0% | 0.0% | 0.0% | 7.6% | 1.3% | 6.3% | 6.3% |
| 0 | 0.0% | 0.0% | 0.0% | 8.9% | 1.3% | 3.8% | 5.1% |
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mmm |
-3 | -2 | -1 | 0 | 1 | 2 | 3 |
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The above table shows educational posture (-3 to +3) verses marketing posture (2, 1, 0). In this table, the value of 30.4% clearly stands out. This value indicates that nearly a third of the anxiety/panic web sites are directly marketing products or services while failing to address any of the three educational issues! In other words, these sites appear to be very interested in marketing while showing little or no concern for patient education. We have to ask, "Is this a case of commercial exploitation?"
The notion of "commercial exploitation" may seem obvious at first. The term commonly conjures up an impression of marketers who knowingly prey on customer vulnerabilities. If we adopt this impression as a definition, we then have to compare this definition to the web sites in question. To begin, it is obvious that the people behind these sites are marketers because they are selling something. Less obvious is whether or not these marketers are preying on customer vulnerabilities. Well, in the world of anxiety and panic disorders, customers (i.e. patients) are often desperate for relief. Such desperation often compels patients to seek relief before gaining a practical knowledge of their disorders; disorders which are, at best, difficult to understand. Therefore, one of the greatest customer vulnerabilities is inadequate education. Since the web sites in question fail to address all three of the educational concepts considered, the case for commercial exploitation may seem to be proved. The problem, however, is that we can't determine if these marketers "knowingly prey" on customer vulnerabilities (at least not within the scope of this study). Another way to view the commercial exploitation issue is from the perspective of web site developers. People who develop web sites are just as human as anyone else, and are just as capable of mistakes and oversights. In some cases, people develop web sites that directly market and can, through pure accident, forget the importance of including educational material. I know this for a fact because I, myself, made this exact same mistake when creating a site for my stepfather (who happens to be a psychotherapist). It wasn't until I conducted this study that I realized the gravity of my mistake (the site is included in these statistics and I plan to correct the site in the near future). Nonetheless, I doubt that all such sites are the result of innocent mistakes. Historically, people who suffer obscure disorders have always been targets of commercial exploitation. Generally speaking, cases of "commercial exploitation" are difficult to determine. However, we can at least say that such web sites do create the potential for commercial exploitation, intentional or not. Such sites can confuse or mislead patients, delay appropriate diagnosis and treatment, worsen already stressed finances, prolong horrific suffering and subject patients to a variety of health risks. Such concerns are very important in regard to anxiety and panic disorders because such disorders have been, and sometimes still are, very misunderstood. Finally, recognizing that such sites carry the potential for commercial exploitation, it is appropriate to ask who is creating such sites (see below). |
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Advisory Posture vs Direct Marketing with Zero Educational Posture |
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Number of Sites |
2 | 0 | 2 | 0 | 5 | 8 | 5 | 2 |
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Advisory Posture |
Unspecified | Lay Person | Patient | Spiritual Worker | Social Worker | Doctor of Psychology | Doctor of Medicine | Doctors of Psychology and Medicine |
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Among the anxiety/panic web sites that directly market and fail to address the educational issues, doctors of psychology form the most significant group. This group is followed by doctors of medicine and social workers. Within these three groups, these numbers represent roughly half of the sites they present on the web. In other words, there is much room for improvement and there exists a significant potential for commercial exploitation of anxiety/panic patients on the web.
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